- To promote Rare Diseases as human rights priority through public awareness.
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To contribute towards development of Public Policy and take part in implementation, such as Rare Disease Policy and Orphan Drug Policy.
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To collaborate with advocacy organizations from India, and people living with rare diseases; working jointly to connect them with national & international forums such as NORD, EURORDIS, RDI, Global gene, UDN, etc.
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To accelerate diagnosis and treatment options for patients with rare diseases through public-private partnerships, and by advocating mandatory New Born screening·
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To Facilitate & encourage Clinical Trials , Research & Orphan drug development activities.
