About Us:
ORDI (www.ordindia.in) is a national umbrella organization representing the collective voice of all patients with rare diseases in India, setup as a section 25 non-profit company in India.
Vision:
A better Life for people with Cystic fibrosis.
Mission:
Our mission is to provide support to cystic fibrosis patients by facilitating information about cystic fibrosis, to provide treatment at lower costs, create awareness about cystic fibrosis and support patient advocacy.
Objectives:
1.To create awareness amongst stakeholders like medical fraternity, industry and policy makers.
2.Enable access to treatment and support system in India.
3.To work closely with medical & scientific fraternity to accelerate diagnosis and treatment options for patients with cystic fibrosis.
4.To work closely with other stakeholders like international parent support groups.
5.To support advocacy work to implement rare disease policy in India.
